So it has been an exciting, frustrating week at the Dunbar house. Abby started puking on last Sunday, Skylar started on Wednesday, Weston blew on Thurs., Jamy and I rounded out the pukin' on Friday. Good news the bug only lasted a few hours for each of us, but yuck while it was here!
In the midst of the puke I got to go a few rounds with some people at the neurology clinic at Children's Mercy. I won't give you all of the frustrating details as they are too numerous to count. Someday maybe I will write a book and give you all a discount on a copy. Basically, on Tuesday we got the update from her pediatrician that I wrote about this week. Somewhat abnormal EEG, but probably nothing to worry about, go on with life. Yippeee!!! He did want me to confer with Children's just to make sure they weren't seeing something he didn't since they are the "experts". I called them. Noone called me back. Finally, after two days I called them back on Thursday. Got bounced all over the place, noone could figure out who her doctor was, who ordered the test or who could give me the results. Insert a day of lots of confusion, frustration and anxiety here. Finally, talked to the on-call neurologist that night. Guy has the beside manner of a skunk! He says.....EEG shows abnormal spikes consistent with someone prone to have seizures. I say....Okay we know she is prone to have febrile seizures so we are good right? He says....No someone with febrile seizures has a normal EEG. This is different. I say.....HUH and what does that mean? He says.....She may or may not have a seizure disorder. I am thinking......Gee, glad we paid you all that money to clear that one up. After a very frustrating, circular phone call with this guy I come away with......we won't know unless she starts having seizures not associated with fevers if something is wrong. Nothing to do but wait.
Gotta love a diagnosis like that. But sooooo much better than an outright your daughter has epilepsy and we need to get her on some mind numbing drugs right this minute. So that God for that.
I called her pediatrician back the next day who basically clarified that the other doctor was pretty much saying the same thing our doctor was, just in a much less reassuring way.
So here is where we are.......Abby is at a slightly higher risk of developing a seizure disorder because she has complex febrile seizures. She is also at a slightly higher risk of developing a seizure disorder because she has some abnormal spikes on her EEG. Something like 8% of the general population also show these spikes and never develop anything though. So for now, we do nothing except thank God for such a good diagnosis and pray that nothing more ever comes of it. We all just continue to let her be a normal kid doing normal kid things. For Jamy and I there will always be a little undercurrent of anxiety wondering if the other shoe is going to fall, but we will not worry about it anymore than we have to. Our kids could get stricken with much worse things at any minute and I am not going to spend my life worry about everyone of them. That is a good way to miss out on all of the good times.
So for now, please everyone say a prayer for Abby and remember her in your prayers from time to time. I am confident that no matter what comes of this she will grow to be an amazing person surrounded by lots of love and God will help us to help her become that person.
Take care and have a great beautiful evening. Finally, the weather here is warm so "YeeHaw!"
Sunday, January 27, 2008
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